There is a story and reason behind everything and ours is David Jeffries aka "Deejay". He is the inspiration for Crown Cancer and his story continuously gives us the motivation to stay dedicated to re-creating cancer care. Deejay was a fighter, a educator, a lover and a giver.
Deejay was the kind of person you never forget. He was more than just a son, a father, a fiancé, a mate - he was a force of nature. The kindest soul, the most giving heart, and as man who would do anything to help another, whether they were family, a friend or a complete stranger. His purpose in life was simple, to bring joy, to make people laugh and to stand up for what is right. He had incredible way with people - he could connect with anyone, making them feel truly seen and understood. He stood for doing the right thing, he believed in justice, in knowledge, in fighting for the rights that so many of us a never taught. He made it his mission to educate others always his deep understanding of the Australian Constitution and the laws that protect us.
Above all, Deejay was love. As a father, he was devoted. As a son, he was unwavering. As a fiancé, unforgettable. As a mate, he was the best you could ask for. Always the one that we counted on and would go to for anything and everything. His strength, his resilience, and his heart defined him.
Even though he's no longer here, his spirit lives on - not just in the people who loved him, but in this charity. Crown Cancer Charity is built on his values: care, justice and compassion. His legacy is one of kindness, knowledge and the belief that no one should ever feel alone in their fight.
Deejay gave everything he had to make the world better for others. And through Crown Cancer he will continue to do so
Through Deejay & I's cancer journey we seen the holes in the system #1 is the labeling of a patient. We sold out house 2 days before we had to go to hospital because Deejay was vomiting black tar. Monash Clayton hospital had on their system that he was HOMELESS. 30 years go Deejay had a heroin addiction and they labeled him a DRUG USER. The drs performed a illegal surgery without anesthesia involving a small saw to see why NGT tube was blocking he had something to say they wouldn't listen he stated it was his body and used language they did not like they labled him ABUSIVE. This truly effected the care that Deejay got at all times, i had to contact the hospital lisason officer and a legal team for misconduct and negligence.
Seven years before Deejay was diagnosed with stomach cancer he went to his GP, Dr Stephen Ward at Our Medical Cranbourne and explained to the Dr Ward that he felt a presence in his stomach -𝙧𝙞𝙜𝙝𝙩 where his tumor would later on be found, and telling Dr Ward he was suffering from: minor lower stomach pain and acid reflux. Instead of running scans or investigating further, Dr Ward completely ignoring Deejays word on what he felt and dismissed it as a “peptic ulcer”. Prescribing him over the counter nexium and gavascon. Deejays symptoms 𝙨𝙝𝙤𝙪𝙡𝙙 𝙝𝙖𝙫𝙚 𝙗𝙚𝙚𝙣 𝙞𝙣𝙫𝙚𝙨𝙩𝙞𝙜𝙖𝙩𝙚𝙙 𝙥𝙧𝙤𝙥𝙚𝙧𝙡𝙮. We put our full faith into our Dr. Ward, if proper investigation was completed or a second opinion encouraged Deejay would still be here with us today. Listen to your body and 𝙩𝙧𝙪𝙨𝙩 𝙮𝙤𝙪𝙧 𝙜𝙪𝙩 - literally.
Hearing "it's cancer" is life-shatterting. Butin that moment, you cling to the belief that the system will catch you - that the doctors and hospitals will take the lead, and you follow their professional direction. From the very start of diagnosis straight away Deejay needed a NGT tube in one nostril to get the black tar like liquid out of his stomach that the cancer tumor was expressing into his system. It took 6 surgeries to get it right, 6 weeks in total we spent at Dandenong hospital back and forth focusing on the surgeons not putting the right length in. 48cm too long which resulted in Deejay almost dying by the tube coiling inside him causing him to loose consciousness and struggle to breathe and swallow.
Nothing prepares you to bring cancer home. We walked out of the hospital ever so great full to be getting to go back home. We were going home with 2 NGT tubes - one for feeding and medfication (tumor was the size of a fist at the bottom of the stomach, covering the entrance to the the intestines) the other for the black tar the tumor was expressing. We were shown once how to hook up the feeding, told that wed have at home hospital visits, all health professionals made out to us like they had a process and we were not apart of it. How wrong we were. We came to learn that we werent given any information on how life at home would play out in any circumstance. We werent given the essential thingsor advice that were nessecary. Not even a single phone number to call when we had a question. 𝙉𝙚𝙜𝙡𝙚𝙘𝙩𝙚𝙙
It took around 3 months into our journey to get the ball rolling with treatments because of the incorrectly positioned NGT tubes it delayed Deejays treatment. We were told later in our journey by head oncologist if treatments started earlier tumour could have been removed. I remember Deejays first radiation like yesterday, it was the very first treatment of 15, 5 radiations and 10 chemotherapy treatments. Because 1, it was the beginning of seeing how these “therapies” effected Deejay. 2, the bag attached to one of his NGT tubes that held the black tar liquid turned clear! I remember the smile it bought to my face, to see change so soon after radiation gave us hope. Ofcorse it come with a price, his health and wellbeing. I was by Deejays side through every appointment, treatment and conversation all health professionals knew I was his carer and not once did we get informed about the risks or precautions to take while radiation is in Deejays system. Naturally always ensuring he was most comfortable as possible it involved me emptying his fluid bag that was radioactive. Shockingly, neither of us was ever informed about the risks of acute radiation syndrome. A critical piece of information professionals should have provided.
Our values are at the core of everything we do. We believe in compassion, empathy, and the power of community. We are committed to treating every individual we serve with dignity and respect, and to working together to create a better world.
Since our founding in 2005, Crown Cancer Charity - Caring is the Cure has had a significant impact on our community. We have provided food, shelter, and other basic necessities to thousands of individuals in need, and we have helped countless others gain the skills and resources they need to improve their lives.
I know this because I lived it. When my fiance, Deejay was diagnosed with stomach cancer, we braced ourselves for the fight of out lived. For two and a half years, we battled side by side, navagting a system that was supposeto provide care but often fell short. I saw firsthand the cracks in the health system, the hospital processes that felt mechanical rather than compassionate, and the at-home care that lacked the resources and support needed for real comfort and dignity.
Cancer care, as it stands today is about survival - but what about 𝙡𝙞𝙫𝙞𝙣𝙜 through it? What about the quality of life, the human connection and the unwavering support patients and their families so desperately need? I was by Deejays side while he endured 5 rounds of radiation, ten chemotherapy treatments and countless hospital stays. I witnessed his strength, resilience and his unwavering spirit. But I also witnessed the gaps - the moments and times where the system failed to meet the true needs of those fighting this battle. 𝘾𝙝𝙖𝙣𝙜𝙚 𝙞𝙨𝙣'𝙩 𝙟𝙪𝙨𝙩 𝙣𝙚𝙘𝙚𝙨𝙨𝙖𝙧𝙮 𝙞𝙩𝙨 𝙪𝙧𝙜𝙚𝙣𝙩.
Crown Cancer Carer Companions. (CCCC) They cover all basis, are dedicated to ensuring that no patient has to navigate the overwhelming cancer journey alone. They act as personal advocates, coordinatiors, and unwavering
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